News
LAL‑D Study – Phase 3
LAL‑D Study – Phase 3 the University of Rochester (USA) is currently conducting Phase 3 of its research project on Lysosomal Acid Lipase...
Genetic liver diseases: rare, but clinically highly relevant
Genetic liver diseases: rare, but clinically highly relevant This article highlights that genetic liver diseases, while individually uncommon,...
en‑LISOS Journal – Issue No. 9, March 2026
en‑LISOS Journal – Issue No. 9, March 2026 en‑LISOS has published its Issue 9 (March 2026), featuring scientific and informative content focused...
Interdisciplinary Conference on Advances in Rare Diseases
12th Interdisciplinary Conference on Advances in Rare Diseases On March 6, we took part in the 12th Interdisciplinary Conference on Advances in...
The FC Barcelona Foundation supporting Rare Diseases
Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event On the occasion of World Rare Disease Day, the FC Barcelona...
Rare Liver Diseases take the spotlight at the European Parliament
Rare Liver Diseases take the spotlight at the European Parliament — and LAL-D Patient Organization was there On Rare Disease Day, our...
Rare Disease Day
RARE DISEASE DAY 2026 February 28th marks Rare Disease Day. Early diagnosis can change a life. High cholesterol is very common in the population....
Grupo Copese collaborates with El Viaje de Nica
Grupo Alimentario Copese We are incredibly happy to share this news. 💜 Thanks to the outreach efforts of the people involved in our association,...
Practical Guidelines for Nutritional Care in Infantile-Onset LAL-D (Wolman Disease)
We share a key publication for the LAL-D community From the association, we want to highlight an essential scientific review: “Best Practices for...
Participate in the International Study for Caregivers of LAL-D Patients
The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid...
Rare Liver Diseases Symposium
Our participation in the Rare Liver Diseases Conference On November 18, LAL-D Patient Organization had the honor of participating in the Rare...
AELALD is growing and transforming
We are pleased to inform you of an important step in the evolution of our organization: AELALD has officially changed its name to LAL-D Patient...











