News
Grupo Copese collaborates with El Viaje de Nica
Grupo Alimentario Copese We are incredibly happy to share this news. 💜 Thanks to the outreach efforts of the people involved in our association,...
Practical Guidelines for Nutritional Care in Infantile-Onset LAL-D (Wolman Disease)
We share a key publication for the LAL-D community From the association, we want to highlight an essential scientific review: “Best Practices for...
Participate in the International Study for Caregivers of LAL-D Patients
The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid...
Rare Liver Diseases Symposium
Our participation in the Rare Liver Diseases Conference On November 18, LAL-D Patient Organization had the honor of participating in the Rare...
AELALD is growing and transforming
We are pleased to inform you of an important step in the evolution of our organization: AELALD has officially changed its name to LAL-D Patient...
Interview that Somos Pacientes Did with @Eduardolopezsantamaria
Here you can see the interview that Somos Pacientes did with @eduardolopezsantamaria, president of the Spanish Association of Lysosomal Acid...
Where would you like your baby to be born?
The answer is not trivial: in Spain, the number of diseases detected in neonatal screening (the so-called "neonatal screening") varies greatly...
LAL-D CONNECT: a New Future for LAL-D
Today, we had the opportunity to attend LAL-D CONNECT: A New Future for LAL-D. Updates in the diagnosis, management, and treatment applied to...