News - lald.org

12th Interdisciplinary Conference on Advances in Rare Diseases On March 6, we took part in the 12th Interdisciplinary Conference on Advances in...

Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event On the occasion of World Rare Disease Day, the FC Barcelona...

Rare Liver Diseases take the spotlight at the European Parliament — and LAL-D Patient Organization was there On Rare Disease Day, our...

RARE DISEASE DAY 2026 February 28th marks Rare Disease Day. Early diagnosis can change a life. High cholesterol is very common in the population....

Grupo Alimentario Copese We are incredibly happy to share this news. 💜 Thanks to the outreach efforts of the people involved in our association,...

We share a key publication for the LAL-D community From the association, we want to highlight an essential scientific review: “Best Practices for...

The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid...

Our participation in the Rare Liver Diseases Conference On November 18, LAL-D Patient Organization had the honor of participating in the Rare...

We are pleased to inform you of an important step in the evolution of our organization: AELALD has officially changed its name to LAL-D Patient...

Here you can see the interview that Somos Pacientes did with @eduardolopezsantamaria, president of the Spanish Association of Lysosomal Acid...

The answer is not trivial: in Spain, the number of diseases detected in neonatal screening (the so-called "neonatal screening") varies greatly...

Today, we had the opportunity to attend LAL-D CONNECT: A New Future for LAL-D. Updates in the diagnosis, management, and treatment applied to...