Welcome to the LAL-D Patient Organization (LAL-D PO), the international organization for patients and families affected by Lysosomal Acid Lipase Deficiency (LAL-D).
Our goal is to support families, raise awareness of the disease, advance research, and promote early diagnosis, which is key to saving lives and improving patients’ quality of life.
Since 2015, we have been working to ensure that no one affected by LAL-D feels alone.
United for Newborn Screening in Europe
LAL-D Patient Organization joins the European call to strengthen newborn screening and reduce inequalities across Europe LAL-D Patient Organization is proud to have contributed to the new European position statement on newborn screening published by EURORDIS as a...
FEETEG and LAL-D Patient Oganization – Together for Research
FEETEG and LAL-D Patient Organization Renew Their Collaboration Agreement On September 3, 2026, the Spanish Foundation for the Study and Treatment of Gaucher Disease and other Lysosomal Disorders (FEETEG) and LAL-D Patient Organization officially renewed their...
TRPM2, TFEB and LAL: A New Link
New Research Identifies a Pathway Regulating Lysosomal Acid Lipase (LAL) Activity and Lysosomal Health Research into lysosomal diseases continues to advance, providing new insights into the cellular mechanisms that maintain metabolic balance. A recent study...
