Welcome to the LAL-D Patient Organization (LAL-D PO), the international organization for patients and families affected by Lysosomal Acid Lipase Deficiency (LAL-D).
Our goal is to support families, raise awareness of the disease, advance research, and promote early diagnosis, which is key to saving lives and improving patients’ quality of life.
Since 2015, we have been working to ensure that no one affected by LAL-D feels alone.
Interdisciplinary Conference on Advances in Rare Diseases
12th Interdisciplinary Conference on Advances in Rare Diseases On March 6, we took part in the 12th Interdisciplinary Conference on Advances in Rare Diseases, organized by IBIMA-RARE at the Maternal and Child Hospital of Málaga. This key event brought together...
The FC Barcelona Foundation supporting Rare Diseases
Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event On the occasion of World Rare Disease Day, the FC Barcelona Foundation made it possible for girls affected by rare diseases to experience a truly unforgettable day alongside the...
Rare Liver Diseases take the spotlight at the European Parliament
Rare Liver Diseases take the spotlight at the European Parliament — and LAL-D Patient Organization was there On Rare Disease Day, our organization had the honour of participating in the launch of the Rare Liver Diseases Policy Position Paper at the European...
