Welcome to the LAL-D Patient Organization (LAL-D PO), the international organization for patients and families affected by Lysosomal Acid Lipase Deficiency (LAL-D).
Our goal is to support families, raise awareness of the disease, advance research, and promote early diagnosis, which is key to saving lives and improving patients’ quality of life.
Since 2015, we have been working to ensure that no one affected by LAL-D feels alone.
Italy approves reimbursement for sebelipase alfa (KANUMA®)
Important milestone for the LAL-D community in Italy We are pleased to see that the Italian Medicines Agency (AIFA) has approved the reimbursement of sebelipase alfa (KANUMA®) for the treatment of people living with Lysosomal Acid Lipase Deficiency (LAL-D),...
Don’t Miss a Beat
Don’t Miss a Beat: Your Heart Can Tell a Story About LAL-D Too On World Heart Day 2026, LAL-D Patient Organization joins the Cardioalianza campaign “Don’t Miss a Beat” to raise awareness about cardiovascular health and to shine a light on...
United for Newborn Screening in Europe
LAL-D Patient Organization joins the European call to strengthen newborn screening and reduce inequalities across Europe LAL-D Patient Organization is proud to have contributed to the new European position statement on newborn screening published by EURORDIS as a...
