Welcome to the LAL-D Patient Organization (LAL-D PO), the international organization for patients and families affected by Lysosomal Acid Lipase Deficiency (LAL-D).
Our goal is to support families, raise awareness of the disease, advance research, and promote early diagnosis, which is key to saving lives and improving patients’ quality of life.
Since 2015, we have been working to ensure that no one affected by LAL-D feels alone.
Grupo Copese collaborates with El Viaje de Nica
Grupo Alimentario Copese We are incredibly happy to share this news. 💜 Thanks to the outreach efforts of the people involved in our association, Grupo Copese learned about the El Viaje de Nica campaign, led by FEDER and Sant Joan de Déu Hospital, with the support...
Practical Guidelines for Nutritional Care in Infantile-Onset LAL-D (Wolman Disease)
We share a key publication for the LAL-D community From the association, we want to highlight an essential scientific review: “Best Practices for the Nutritional Management of Infantile-Onset Lysosomal Acid Lipase Deficiency: A Case-Based Discussion”, published in...
Participate in the International Study for Caregivers of LAL-D Patients
The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid Lipase Deficiency (LAL-D). The goal is to identify, through an anonymous survey, the symptoms and aspects that most...
