Welcome to the LAL-D Patient Organization (LAL-D PO), the international organization for patients and families affected by Lysosomal Acid Lipase Deficiency (LAL-D).
Our goal is to support families, raise awareness of the disease, advance research, and promote early diagnosis, which is key to saving lives and improving patients’ quality of life.
Since 2015, we have been working to ensure that no one affected by LAL-D feels alone.
Participate in the International Study for Caregivers of LAL-D Patients
The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid Lipase Deficiency (LAL-D). The goal is to identify, through an anonymous survey, the symptoms and aspects that most...
Rare Liver Diseases Symposium
Our participation in the Rare Liver Diseases Conference On November 18, LAL-D Patient Organization had the honor of participating in the Rare Liver Diseases Day, a key event to continue advancing the visibility and understanding of conditions that still face...
AELALD is growing and transforming
We are pleased to inform you of an important step in the evolution of our organization: AELALD has officially changed its name to LAL-D Patient Organization (LAL-D PO), following the approval of the amendment to our statutes and its registration with the National...
