WHO WE ARE

Welcome to the LAL-D Patient Organization (LAL-D PO), an international organization supporting patients and families affected by Lysosomal Acid Lipase Deficiency (LAL-D)

Over these 10 years, we have achieved:

• United and supported dozens of families.
• Raised awareness of this rare and frequently underdiagnosed disease.
• Established relationships with physicians, researchers, and health authorities.
• Promoted the approval and access to enzyme replacement therapy.

However, LAL-D knows no borders. After a decade of work, we felt the need to take a step further and open ourselves to the world. Therefore, we have evolved into the LAL-D Patient Organization (LAL-D PO), with an international vocation and collaborative spirit, building bridges between patients, families, and professionals in Europe and the rest of the world.