LAL-D Patient Organization Joins CardioAlianza
On May 20, 2026, during the General Assembly of CardioAlianza held in Valencia, the incorporation of LAL-D Patient Organization as a new member entity was officially approved.
We would like to express our sincere gratitude for the warm welcome. Becoming part of CardioAlianza represents an important milestone in our mission to advocate for patients, especially those living with rare diseases such as lysosomal acid lipase deficiency (LAL-D).
CardioAlianza is a non-profit organization that brings together patient associations in the field of cardiovascular diseases across Spain, working to improve quality of life, promote prevention, and amplify the patient voice. We are confident that our experience can contribute a valuable and complementary perspective, particularly regarding the impact of rare diseases on cardiovascular health.
Through this collaboration, we aim to:
- Contribute to a better understanding of the cardiovascular implications of rare diseases such as LAL-D
- Raise awareness about the importance of early diagnosis
- Support initiatives focused on comprehensive cardiovascular care
Participation in the XII Congress of Patients with Cardiovascular Diseases
In addition, we had the opportunity to attend the 12th Congress of Patients with Cardiovascular Diseases, organized by CardioAlianza and held on May 21, 2026, in Valencia.
👉 Download more information about the congress
This event brought together patients, caregivers, healthcare professionals, researchers, and patient organizations, creating a shared space to improve knowledge, prevention, and care in cardiovascular health.
Key topics addressed during the congress included:
- Global cardiovascular risk and the role of patients in managing their health
- The cardiorenal-metabolic connection and its impact on patient outcomes
- Emotional health and its influence on cardiovascular conditions
- The importance of self-care and the role of patient organizations
The congress continues to establish itself as a key platform for sharing knowledge, fostering collaboration, and strengthening the active role of patients within the healthcare system.
Looking Ahead
Joining CardioAlianza marks the beginning of a new and promising chapter for our organization.
We remain committed to:
- Raising awareness of LAL-D
- Advocating for patient needs and rights
- Contributing to improved cardiovascular health through a more integrated and inclusive perspective
Thank you for being part of this journey. đź’™
