Genetic liver diseases: rare, but clinically highly relevant
Genetic liver diseases: rare, but clinically highly relevant This article highlights that genetic liver diseases, while individually uncommon, represent a significant and often underdiagnosed cause of chronic liver disease in adults. Detection is particularly...
en‑LISOS Journal – Issue No. 9, March 2026
en‑LISOS Journal – Issue No. 9, March 2026 en‑LISOS has published its Issue 9 (March 2026), featuring scientific and informative content focused on lysosomal diseases. In this issue, LAL‑D Patient Organization has contributed with an article written by Eduardo López,...
Interdisciplinary Conference on Advances in Rare Diseases
12th Interdisciplinary Conference on Advances in Rare Diseases On March 6, we took part in the 12th Interdisciplinary Conference on Advances in Rare Diseases, organized by IBIMA-RARE at the Maternal and Child Hospital of Málaga. This key event brought together...
The FC Barcelona Foundation supporting Rare Diseases
Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event On the occasion of World Rare Disease Day, the FC Barcelona Foundation made it possible for girls affected by rare diseases to experience a truly unforgettable day alongside the...
