The FC Barcelona Foundation supporting Rare Diseases
Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event On the occasion of World Rare Disease Day, the FC Barcelona Foundation made it possible for girls affected by rare diseases to experience a truly unforgettable day alongside the...
Rare Liver Diseases take the spotlight at the European Parliament
Rare Liver Diseases take the spotlight at the European Parliament — and LAL-D Patient Organization was there On Rare Disease Day, our organization had the honour of participating in the launch of the Rare Liver Diseases Policy Position Paper at the European...
Rare Disease Day
RARE DISEASE DAY 2026 February 28th marks Rare Disease Day. Early diagnosis can change a life. High cholesterol is very common in the population. However, in some cases it may be a sign of a rare condition such as lysosomal acid lipase deficiency (LAL‑D). If you have:...
Grupo Copese collaborates with El Viaje de Nica
Grupo Alimentario Copese We are incredibly happy to share this news. 💜 Thanks to the outreach efforts of the people involved in our association, Grupo Copese learned about the El Viaje de Nica campaign, led by FEDER and Sant Joan de Déu Hospital, with the support of...
