Rare Liver Diseases Symposium
Our participation in the Rare Liver Diseases Conference On November 18, LAL-D Patient Organization had the honor of participating in the Rare Liver Diseases Day, a key event to continue advancing the visibility and understanding of conditions that still face...
AELALD is growing and transforming
We are pleased to inform you of an important step in the evolution of our organization: AELALD has officially changed its name to LAL-D Patient Organization (LAL-D PO), following the approval of the amendment to our statutes and its registration with the National...
Interview that Somos Pacientes Did with @Eduardolopezsantamaria
Here you can see the interview that Somos Pacientes did with @eduardolopezsantamaria, president of the Spanish Association of Lysosomal Acid Lipase Deficiency (#AELALD). From his point of view, when it comes to #UltraRareDiseases, the national scope falls short. “𝘞𝘪𝘵𝘩...
Where would you like your baby to be born?
The answer is not trivial: in Spain, the number of diseases detected in neonatal screening (the so-called “neonatal screening”) varies greatly depending on the autonomous community. While 51 diseases are screened for in Galicia and 47 in Murcia, in other...
