Interdisciplinary Conference on Advances in Rare Diseases
12th Interdisciplinary Conference on Advances in Rare Diseases On March 6, we took part in the 12th Interdisciplinary Conference on Advances in Rare Diseases, organized by IBIMA-RARE at the Maternal and Child Hospital of Málaga. This key event brought together...
The FC Barcelona Foundation supporting Rare Diseases
Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event On the occasion of World Rare Disease Day, the FC Barcelona Foundation made it possible for girls affected by rare diseases to experience a truly unforgettable day alongside the...
Rare Liver Diseases take the spotlight at the European Parliament
Rare Liver Diseases take the spotlight at the European Parliament — and LAL-D Patient Organization was there On Rare Disease Day, our organization had the honour of participating in the launch of the Rare Liver Diseases Policy Position Paper at the European...
Rare Disease Day
RARE DISEASE DAY 2026 February 28th marks Rare Disease Day. Early diagnosis can change a life. High cholesterol is very common in the population. However, in some cases it may be a sign of a rare condition such as lysosomal acid lipase deficiency (LAL‑D). If you have:...
