Practical Guidelines for Nutritional Care in Infantile-Onset LAL-D (Wolman Disease)
We share a key publication for the LAL-D community From the association, we want to highlight an essential scientific review: “Best Practices for the Nutritional Management of Infantile-Onset Lysosomal Acid Lipase Deficiency: A Case-Based Discussion”, published in the...
Participate in the International Study for Caregivers of LAL-D Patients
The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid Lipase Deficiency (LAL-D). The goal is to identify, through an anonymous survey, the symptoms and aspects that most affect...
2025 7th LAL-D Family Meeting and Expert Committee
The LAL-D community strengthens its commitment to early detection and scientific progress in a dual meeting held in Madrid The city of Madrid hosted two key events for the Lysosomal Acid Lipase Deficiency (LAL-D) community on November 21 and 22, 2025: the Expert...
