We are pleased to inform you of an important step in the evolution of our organization: AELALD has officially changed its name to LAL-D Patient Organization (LAL-D PO), following the approval of the amendment to our statutes and its registration with the National Registry of Associations.
This new name reflects the growing international scope of our work, driven by the increasing demand for support and guidance from families affected by Lysosomal Acid Lipase Deficiency (LAL-D) beyond Spain. We are receiving more and more requests from patients and families, mainly in Europe but also from Latin America and other parts of the world, which has encouraged us to adapt our structure to provide a broader and more global response.
Some of the most immediate developments include:
- A plan for internationalization, which will allow us to strengthen our connections with patient associations, healthcare professionals, researchers, and institutions in different countries.
- A new website, available in two languages (English and Spanish), offering reliable and up-to-date information about the disease, its challenges, and available resources.
- Continuation of our core mission: supporting families, raising awareness, promoting research, and advocating for the importance of early diagnosis.
We are confident that this new stage will reinforce our ability to collaborate and generate a positive impact for all individuals affected by LAL-D, both in Spain and worldwide.
