Rare Disease Day
RARE DISEASE DAY 2026 February 28th marks Rare Disease Day. Early diagnosis can change a life. High cholesterol is very common in the population. However, in some cases it may be a sign of a rare condition such as lysosomal acid lipase deficiency (LAL‑D). If you have:...
Grupo Copese collaborates with El Viaje de Nica
Grupo Alimentario Copese We are incredibly happy to share this news. 💜 Thanks to the outreach efforts of the people involved in our association, Grupo Copese learned about the El Viaje de Nica campaign, led by FEDER and Sant Joan de Déu Hospital, with the support of...
Practical Guidelines for Nutritional Care in Infantile-Onset LAL-D (Wolman Disease)
We share a key publication for the LAL-D community From the association, we want to highlight an essential scientific review: “Best Practices for the Nutritional Management of Infantile-Onset Lysosomal Acid Lipase Deficiency: A Case-Based Discussion”, published in the...
Participate in the International Study for Caregivers of LAL-D Patients
The University of Rochester (USA) is conducting an international study aimed at current or former caregivers of individuals with Lysosomal Acid Lipase Deficiency (LAL-D). The goal is to identify, through an anonymous survey, the symptoms and aspects that most affect...
