Martina, affected by LAL-D, represented the LAL-D Patient Organization at the event
On the occasion of World Rare Disease Day, the FC Barcelona Foundation made it possible for girls affected by rare diseases to experience a truly unforgettable day alongside the players of FC Barcelona Women’s Team. It was a meeting filled with emotion, visibility, and support for those living with a rare disease.
The participation of our association, together with Martina, is part of the “FECAMM Dona” project of the Catalan Federation of Rare Diseases (Federació Catalana de Malalties Minoritàries), an initiative that promotes recognition and gives a voice to women and girls within the field of rare diseases.
Thank you to the BARÇA FOUNDATION, FECAMM Federació Catalana de Malalties Minoritàries, and FRANCESC CAYUELA for counting on our association, and thank you, Martina, for your commitment.
We continue working together to create spaces of inclusion, visibility, and hope. ❤️
You can watch the full video on YouTube by clicking on the image below 👇 👇
