LAL‑D Study – Phase 3

LAL‑D Study – Phase 3

2 Apr, 2026 | blog

LAL‑D Study – Phase 3   the University of Rochester (USA) is currently conducting Phase 3 of its research project on Lysosomal Acid Lipase Deficiency (LAL‑D). Our organization is not conducting this study, but we would like to help share this opportunity and...
Genetic liver diseases: rare, but clinically highly relevant

Genetic liver diseases: rare, but clinically highly relevant

31 Mar, 2026 | blog

Genetic liver diseases: rare, but clinically highly relevant This article highlights that genetic liver diseases, while individually uncommon, represent a significant and often underdiagnosed cause of chronic liver disease in adults. Detection is particularly...
en‑LISOS Journal – Issue No. 9, March 2026

en‑LISOS Journal – Issue No. 9, March 2026

30 Mar, 2026 | blog

en‑LISOS Journal – Issue No. 9, March 2026 en‑LISOS has published its Issue 9 (March 2026), featuring scientific and informative content focused on lysosomal diseases. In this issue, LAL‑D Patient Organization has contributed with an article written by Eduardo López,...
Interdisciplinary Conference on Advances in Rare Diseases

Interdisciplinary Conference on Advances in Rare Diseases

7 Mar, 2026 | blog

12th Interdisciplinary Conference on Advances in Rare Diseases On March 6, we took part in the 12th Interdisciplinary Conference on Advances in Rare Diseases, organized by IBIMA-RARE at the Maternal and Child Hospital of Málaga. This key event brought together...